Taj’s diagnosis – part one.

At 20 months, Taj had a good selection of words, yet was still running into walls.  Then, one day, he just stopped talking. There was nothing, only the screeching, whinning, moaning and screaming that comes with a non-verbal child.  This was the big warning for me. I was straight on the phone, demanding that Taj be assessed.

And assessed he was! For a little boy who was nearly two years old, Taj did alot better than expected during a 3 hour assessment. Considering he was running around nearly the whole time, Taj had heaps of energy left.  After a period of deliberation (about 1 month) the results came in………………

Taj wasn’t autistic like Tyson, it was decided that Taj has PDD-NOS (pervasive development disorder – not otherwise specified).  Like I was at the time, you are probably thinking “Huh?”.  PDD-NOS is at the complete opposite end of the autism spectrum to ASD. Where Tyson is over sensitive, Taj is under-sensitive.  Essentially what this means is that Taj is always on a mission to seek out things that stimulate his senses. The assessors also concluded that Taj would probably be non-verbal. 

Now, I don’t take non-verbal as an answer.  Every child can communicate, some do it through speaking whilst others have their own quirky way.  But every child CAN communicate.  For Taj, we started with the basics – the vowels – and went from there.  Everytime he mastered a letter, we heavily praised him.  After awhile, Taj started to say words.  Admittidly, the words were totally out of context but at least they were words.

PECS, SIT (Sensory Integration Therapy) and EI (Early Intervention) have played a big role in Taj’s communication goal.  It took Taj about a year to master PECS stage 1 – his brain processes took about that long to slow down and for him to realise that the pictures actually meant something (and that Mummy wasn’t just being annoying).  The Autism Association of WA (inc) have been wonderful with the level of EI that they provide – I just can’t praise them enough! 

Today, Taj still has endless amounts of energy, he just never stops.  Extremely competitive, Taj is always trying to do the things that Tyson does.  As a result, Taj knows his ABC’s and can count from 1 through to 20 with very little problems.  He does have obsessions but this is just what makes him Taj.

Thanks for reading about my little boy. Naturally, this isn’t all of Taj’s story and I shall write more when time permits.  If you would like any information regarding PDD-NOS (or ASD), please feel free to comment.

Thanks again!

Roxy

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  • CorysMom on Oct 12, 2009

    Hi Roxy!
    Taj sounds awesome! I have a son who is 15 and like yours his apgars was perfect. We had no problems at all during pregnancy and if anything, I was overly protective during my pregnancy being sure to take prenatal vitimans and staying away from anyone who smoked and alcohol was out of the question! Only my son came 2 weeks late…or so they say. I say a child is born after the incubation time is up and somehow we and the doctors got the conception date wrong…idk…haha. I\’m not really sure what to write. I have years of things bottled up so I will just stop here as I don\’t even know if you will come back and read this or not. I\’ve probably typed millions of words in the past so I\’m sure you can understand. I hope to hear from you or anyone with a child with this diagnosis! We can\’t do this by ourselves and I know that I am tired of being left alone and my son is tired of being lonely. So for once, I am reaching out and hoping to make friends.
    Jamie

  • Tia Abina on Mar 10, 2010

    Funny thing my 3 yr old’s name is Taj also. He is non verbal and receiving ABA threapy 21 hrs a week. He doesn’t even attempt to utter words but I have my fingers crossed. he is highly under-sensitive. Good luck.

  • pdd nos autism on Mar 23, 2010

    Hi, Thanks for sharing, just dropin here from google. Im looking for info about PDD-NOS.

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