The following poem is from a collection of 41 written by me to try describing Huntington’s Disease (HD).
This poem is Part one of a two parter. It’s clear that the workplace does not sit easy with those facing HD. The reference to HD being associated with “High Definition” television highlights the ignorance but, as with the genetic testing scenaro, once information is shared it cannot be taken back.
The Boss (Part 1)
Time for Claire’s Appraisal,
It was well overdue.
This time the boss became concerned,
At what he had to do.
The problem? Her performance,
Was clearly getting poor.
He couldn’t understand it,
She’d been his ‘rock’ before!
So when it came to interview,
Her boss tried helping out.
“Are there any problems Claire,
That I should know about?”
“I have HD” Claire bravely said;
“Your telly?” came reply.
The ignorance slapped Claire in face,
And she began to cry.
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