The following poem is from a collection of 41 written by me to try describing Huntington’s Disease (HD).
Here I have broached the hard subject of us carers really knowing what our charges want. There’s a fine line between what the person themselves want, and what the carer thinks is best for them. That is true of any carer situation but, with HD, there is even more danger in dismissing the person’s real wishes and needs.
The Infrequent Daughter
Visiting time, the Home’s not bad,
It keeps him safe and looking well.
The Garden and the rooms are large,
The one before was small as hell.
His daughter smiles, she’s pleased as punch,
She feels she’s made a brilliant choice,
But what she doesn’t see is this,
Her father misses that one voice.
For all the room and flowers there,
His favourite carers’ far away,
And though his daughters’ tried to care,
This isn’t where he wants to stay.
She listens to him asking her,
To let him go back, can’t stay here.
Dismissing him as HD talking,
She’ll come back later, in the year.
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