The following poem is from a collection of 41 written by me to try describing Huntington’s Disease (HD).
Dr Edmond Chiu, Senior Lecturer – University of Melbourne, gave a presentation on HD and noted “Our experience is that the Huntington”s patient retains the ability to appreciate music right to the end. It may be that the part of the brain controlling music ability and music appreciation is not affected by Huntington’s Disease. We don’t know where that part of the brain is, but where ever it is they appreciate music. That is a very important part of their quality of life.’
This poem tries to reflect my own husband’s continued love of rock music which seems to stimulate his brain.
The Magic Of Music
He’s ten years into symptoms,
The illness taking hold.
A couple of infections,
Has helped to make him old.
The frame once large and muscular,
Has since been taking flack.
A special chair’s been purchased,
To help support his back.
And whilst to most observers,
He’s not the man he was,
His friends all know it’s not the case,
He’s still the same because.
Because when they play music,
When hard rock fills the air,
The change in him is clear to see…
Their old mate’s sitting there.
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