The following poem is from a collection of 41 written by me to try describing Huntington’s Disease (HD).
“The Impatient Patient” is about how infuriating HD patients can be. This one was written to try and get acrosss the other side of how rewarding it can be looking after a loved one and how hard it is for the person affected.
Whilst the poems have been written having looked at many peoples’ tales of HD, this one is simply about me and my husband. He’s still able to read a little bit as of Nov 2009 but as every day passes his reading skills are diminishing and he tries his hardest to hide it.
Sometimes my husband is struggling so hard to read an item such as sport, where he really wants to know what’s happening, and I make some excuse to read the article aloud.I can see he is relieved but embarrassed.
I’m doing my best to help him retain his dignity as each layer of indepenence is taken from him but it’s only a matter of time…
The Reader
He read the paper avidly,
But as the illness grew,
His reading skills were fading fast,
Nothing they could do.
But rather than admit defeat,
And take pleasure away,
She carried on regardless,
And bought the thing each day.
OK she had to turn the page,
His hands no longer able,
And then she had to fold it right,
To fit his bedside table.
From time to time she’d read aloud,
If struggling so she felt.
The little looks of gratitude…
Her heart would simply melt.
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