Life in the eyes of someone who cares.

The following poem is from a collection of 41 written by me to try describing Huntington’s Disease (HD).

Here I have broached the hard subject of us carers really knowing what our charges want. There’s a fine line between what the person themselves want, and what the carer thinks is best for them. That is true of any carer situation but, with HD, there is even more danger in dismissing the person’s real wishes and needs.

A young girl watches others at play, desperate for them to notice her and invite her to join in, but she is a carer with her grandmother and no time for play.