The following poem is from a collection of 41 written by me to try describing Huntington’s Disease (HD).

Iin this poem I have tried to bring out how lonely the sufferers must be when their families and friends block them out from social interaction. It’s true that communication is difficult but it must be so lonely shut within your shell watching others live as though nothng has changed.

The Sunday lunch setting then reminded me how torturous it must be to have your senses stimulated by food and yet, because of swallowing difficulties, all you will be fed is a tasteless milk protein drink!