On March 2, 2005, Danny was born. He passed away from SUDEP in mid December of this last year. On his birthday, just under 7000 on "The Danny Did Foundation" Facebook page celebrated his life. We join his family on their mission to protect others from losing their child the same way. And in this little boy’s name, we push ourselves to find something GOOD here in the empty space of loss that we feel for those who loved Danny most of all.

Help us to see that THIS picture of life right now and what your family is doing in your name, doesn’t HAVE to replace the picture of your smile, or mean more than even one of your days here, in order to be a valuable and meaningful picture….too. 

Help your mom and dad to make sense of this new way of loving you. They loved you the old way so much and it’s really hard for them. It’s hard for all of us who have come to know their love for you.

You scattered your seeds here when you left us. They are powerful, beautiful, meaningful seeds. Your parents are watering those seeds with the same care they gave you while you were here, and sharing them with the world. All the success that they have had doing that certainly DOES show that this is the right thing to do and the very best way to love you now; a way we believe you can still feel, Danny.

Help us to know what is in YOUR heart. Your heart is at the center of The Danny Did Foundation. Your eyes are much better than ours are, and like I said, the people who love you most are having a hard time “seeing” right now. None of this would be possible without your special seeds. Keep showing us what to do with them. You have a whole army that wants to make a difference in your name, little guy.  We will all get better with our hearing and seeing this new way because we really want to. Keep leading, Danny.

Your fifth year will be different than the first four were. But that doesn’t mean that year five isn’t special….too. 

I just want you to know that as a person who didn’t have the honor of knowing you until after you were gone, I feel you here. You’re a really bright and loving light, Danny, and doing a fantastic job with shining. That’s really unusual for someone so young, I think. Hearing who you were in THIS life has inspired me. Who you are to me now inspires me still. For all of that I’m so thankful.

Each one of us would gladly give up our Facebook fan status, and even give back all that coming to know you has given, to have you back here at the home you love with your family. We don’t have that power, but I wanted you to know that’s the real first choice here, and that will always be true. 

We are all doing our very best to make the second choice spectacular…too.

We love you Danny Stanton.

40
Liked it
Comments (31)
  • albert1jemi on Mar 3, 2010

    excellent share

  • Michael Eboh on Mar 3, 2010

    HAPPY BIRTHDAY TOO AND TO ALL THOSE BORN IN THE MONTH OF MARCH.

    CHEERS!

  • clay hurtubise on Mar 3, 2010

    Wow, what a beautiful tribute!
    Thanks,
    Clay

  • AlmaG on Mar 3, 2010

    Excellent tribute!

  • gianne on Mar 3, 2010

    Thank you for reading. This family is so special. They are doing some really amazing things in the face of this tragedy.

    Dannydid.org is a page to visit if you are not on Facebook.

    Please support the cause with your love. That\’s what matters most of all. I learned that from Danny….

  • Kyle Emmit on Mar 3, 2010

    I don\\\’t know this story but am going to the Facebook Page you reference. I will gather some support here in London for this.

    Thank you for writing.

  • Kate Smedley on Mar 3, 2010

    A touching and heartfelt tribute that brought tears to my eyes gianne, thanks so much for sharing… this is so sad yet beautiful.

  • gianne on Mar 3, 2010

    Thanks, Kate.

    Danydid.org has a strong voice in in the medical community in just a few months. Anyone who suffers with the horror of night time seizures while sleeping can feel very hopeful that things are changing.

    Danny isn’t done making a difference. Not by a long shot.

  • Julie Amos on Mar 3, 2010

    Crying here. Hoping that this family is able to feel their child and that they put an end to SUDEP for good. I have a friend whol lost her 9 year old to it in December too. I’ll send her the link to the page.

    That was beautifully written, gianne.

  • Ellen on Mar 3, 2010

    Thanks for this and your other piece on Danny too. I’m a big fan thanks to you. My 4 year old is too. This really spoke to me as a parent.

    Regards,
    Ellen

  • Ellen on Mar 3, 2010

    I’m a big fan thanks to you. My 4 year old is too. Thanks for this and your other piece on Danny.

    Ellen

  • Adriann on Mar 3, 2010

    What a beautiful way to view this. I hope his family knows it’s here and reads it. I lost a child many years ago and I wish I had exactly these words to help me with my struggle of letting the past go without feeling like I was letting my daughter go too.

    You are a gifted writer.

    God bless the family. I’m headed to Facebook to support them.

    Adriann

  • kaviarasankk on Mar 3, 2010

    i m his gr8 fan
    he is really hero

  • Karen Gross on Mar 3, 2010

    Thanks for this touching tribute to Danny.

  • Ruby Hawk on Mar 3, 2010

    What a beautiful tribute to a brave little boy. I second “Happy Birthday Danny”

  • Inna Tysoe on Mar 3, 2010

    Thanks for that.

  • Melody SJAL on Mar 4, 2010

    Thanks for sharing this touching post.

  • Mike Greenley on Mar 4, 2010

    What a special way to see the end of life here and the beginning of a different kind of life. If they have 7000 people on their Facebook page in less than 2 months, something (or someone) is creating that. It’s not of this world, that’s for sure.

    Glad to have stumbled on this.

  • Lauren on Mar 4, 2010

    Wow, that’s beautiful.

  • georgia on Mar 4, 2010

    Danny Did is unbelievable! You don\’t need to have epilepsy in your life to find a message there.

    I found it when you last wrote and visit daily.

    Great writing.

  • Christine Ramsay on Mar 5, 2010

    That is a really beautiful tribute to this little boy. I hadn’t heard of him before but his passing is doing much to help fellow sufferers.
    Thank you so much for this piece.

    Christine

  • gianne on Mar 5, 2010

    Thanks, Christine. This Foundation is making a BIG difference. They have met with the medical community here in Chicago and are responsible for some new studies that will be done with Emfit monitors and using them to detect seizures in sleep.

    Danny is at the heart of all this effort and 7000 Facebook Fans in less than 2 months, only tells a small part of this story.

    If you don’t use Facebook, they are also at dannydid.org. It is SO worth the visit.

    Thanks a bunch for reading!!!!

  • Marie James on Mar 5, 2010

    That is so tender. I can feel little Danny nodding his head as you ask for his help. You’re right too. It doesn’t have to compart to having Danny here to also be beautiful.

    You did a great job of simplifying a really complicated concept. One that I think any parent who loses a child struggles with, but has a hard time articulating.

    I would post your link on Epilepsy Pages on Facebook. It will bring people to Danny’s page.

    Marie James

  • Beth on Mar 8, 2010

    It’s so hard to lose a child to anything. There isn’t a reason that ever makes the loss feel ok.

    This breaks my heart, but you’re right. Comparing isn’t the right way to handle moving on.

  • John on Mar 8, 2010

    What a great way to view this. I am in awe.

  • Megan Myers on Mar 8, 2010

    Keep writing about this young boy. I can feel your passion for him and for his family in your writing. It’s a gift.

  • Teves on Mar 9, 2010

    Nice one…

  • Mary Stewart on Mar 21, 2010

    You write from the heart and with such honesty. My eyes were tearing while I read, not because I felt sad, but because writing like this touches all of us in our most sensitive places.

    It’s beautiful. Sounds like this little boy was too.

  • friend on Mar 29, 2010

    Danny always was having fun! Its so sad to know someone you had fun with is not playing outside having a great time with his sister Marygrace and brothers johnny,tommy. Danny, we will always share your love with us on earth.Thank you for being a great person. thank you Danny for sharring a message with us on earth.

  • mary on Dec 13, 2010

    that was beautiful and so spot on.

  • Lisa on Mar 3, 2011

    Thank you for sharing this! I am a BIG fan of the Danny Did Foundation. This family is awsome in all they do to get awarness out there. I know they have helped our family deal with our daughters sudden diagnosis. I could never thank them or Danny enough for all they do!
    I will be a forever fan!

Leave a Comment

Hi there!

Hello! Welcome to Authspot, the spot for creative writing.
Read some stories and poems, and be sure to subscribe to our feed!

Find the Spot

Loading